Invitation: Post op appt with Shannon Sweeney Bell @ Thu Aug 26, 2021 1:15pm - 2:30pm (CDT) (scottchueh.beachbum@blogger.com)

You have been invited to the following event. Post op appt with Shannon Sweeney Bell When Thu Aug 26, 2021 1:15pm – 2:30pm Central Time - Chicago Where 2111 Belcourt Ave Suite103 615-322-2063 (map) Calendar scottchueh.beachbum@blogger.com Who • scottchueh@gmail.com - organizer • Scott Sanderson • scottchueh.beachbum@blogger.com more details » Going (scottchueh.beachbum@blogger.com)?   Yes - Maybe - No    more options »

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SOME DAYS

Some days (This was written January 23, 2020) Some days I’m OK with It And some days I’m not Some days I wanna fight this Degenerative neurological disease and fight hard Some days I just want to curl up and die because the pain from the contracting muscles and curling toes and the twisting of the Ankles & twisting and jerking of the body and my limbs shaking for no reason is more than I can bear Some days I take my medicine on time every couple hours on the dot And my body is like magic And I can do just about anything Some days I don’t take my medicine on time and it wrecks havoc on my body and those off periods are even worse than what they are normally Because with the medication for this disease timing is everything Some days I can do anything I want to do But then I forget my medication 1 time because I’m feeling so good .but that can be the death of me !! Because when I forget my medication on time- don’t forget- it wrecks havoc on my body to the point where I can’t even walk Some days I can see the positive in things and everything I do is good because I’m keeping a positive attitude Some days I’m very negative about everything and I am not a nice person Some days I can be a nice normal girl Some days I can rage so badly that you would probably think that I need to be admitted in the psycho ward Some days I am all right when the medications are working Some day this disease will take away my mobility Someday this disease Will take away my speech Someday this disease will take away my mind Yet some days that is already happening when my medication is not working or I forgot to take it on time and it scares the hell out of me because I’ll Essentially be a living breathing Somewhat paralyzed person with a brain that still works !! So I’ll have so many thoughts in my head but won’t be able to communicate it because I won’t have the ability to move, write or speak. Someday I’ll be in heaven and all the pain will be gone But that SOMEDAY I DO NOT WANT IT TO COME NOW!! I want to be cured!! I want to be healed!!! I want the right medications to make me feel good -100% of the time. I want time with my children but as a whole mom not the 50%mom. I want time with my husband as a 100%. wife and not as a burden or obligations to him I want my new friends to see the active , adventurous fun person I use to be not this sad bi Polarish person I’ve become. That SOMEDAY I WANT .....NOW!!! #Degenerative neurological disease #DYSTONIA